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Wild poll!
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Total votes : 193
 Post subject: Re: *⁂* Confetti Rain *⁂*
Posted: Mar 25th, '21, 14:49    


jacobgrey

Joined: Jun 27th, '10, 20:26
Posts: 10677
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Website: http://www.rhiannondaverc.co.uk
Location: England
@Moi yeah, pretty much haha! It's hard because some doctors out there don't even believe it exists. And even if they do, there are other conditions that might be similar. So, what I did was I took in a whole list of my symptoms (pretty much the above) and showed him how they match up and I think I have it, and I'd like to get tested.

It's a long process though. There's no test for fibromyalgia, at least not an officially recognised one (there is this pain point thing, but it's more of an indicator than a definite pass or fail test). You basically have to get tested for EVERYTHING ELSE it could possibly be, and only when they rule out all possibilities can you get a diagnosis. It took me about a year and a half from first seeing the doctor to final diagnosis and being able to start medication.

(0) (0)
First fairy 8.4.15; 2nd 7.6.17
My books ~*~ My magazine



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 Post subject: Re: *⁂* Confetti Rain *⁂*
Posted: Mar 25th, '21, 21:22    


Moi

Joined: Jun 17th, '08, 21:48
Posts: 54000
Hugs: 525220
Mood: Know you're not alone.
Website: http://seppukuaddict.deviantart.com/
Location: \8u/

I can do that. I've only met my doctor once due to COVID, but he seemed nice. We talked about anime for a little bit.

Yeah, that's what worries me.
But I mean, if I don't have it and we can fix the symptoms I have, I'd be happy.

I actually learned last year that I have an iron deficiency.
For so many years I've felt like I was Anemic, but no one ever told me.
I've had so much blood taken and been to so many doctors and no one ever noticed anything or if they did, they never told me.
One time for a week, I was so exhausted and weak and craved things like tomato soup and even rare steak.
I told my doctor and he sent me to get my blood taken and they never gave me my results.
It took my sleep doctor sending me to get my blood taken for me to finally know that I was correct - I was Anemic.

I'm not a hypochondriac and I don't see like two symptoms and think I have an illness.
I read up on stuff before I start to think I have whatever it is.
So it's nice to know I'm right 8u

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"I'll miss the winter
A world of fragile things
Look for me in the white forest
Hiding in a hollow tree (come find me)
I know you hear me,
I can taste it in your tears."



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 Post subject: Re: *⁂* Confetti Rain *⁂*
Posted: Mar 25th, '21, 21:50    


memoriam

Joined: Feb 14th, '11, 01:50
Posts: 19450
Hugs: 266237
Mood: Mood.
Location: Poland; in my bubble.
Me, being reasonable:
Moi wrote:I'm not a hypochondriac and I don't see like two symptoms and think I have an illness.
My brain: Are you sure? You can't really say objectively that you do, can you?
Me: Well, no... I can't... You think I'm a hypochondriac? :mcomg:
My brain: I think it's possible you don't even know it, yes :mcargh:
*nervous sweating intensifies* :mcargh:

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Dec 21st/22nd 2016, R.I.P. Tila. We'll miss you, you cuddly little stinker <3
Dec 7th 2019, R.I.P. Candy. I'm sorry, my sweet little rumball...
Jan 8th 2020, R.I.P. Cotton. Farewell my golden adventurer </3
May 15th 2021, R.I.P. Kreska. I love you, angel...
Feb 3rd 2022, R.I.P. Kropka. Goodbye, my *starshine*
Nov 27th 2022, R.I.P. Strzałka. You will be missed, lazy ball.
Jan 5th 2023, R.I.P. Iskra. Spark until the end.
Jan 26th 2024, R.I.P. Mocha. You can fool around now, baby <3
Feb 22nd 2024, R.I.P. Latte. Now you are truly a free spirit...
May 29th 2025, R.I.P. Ścieżka. The toughest fighter. We miss you dearly.


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 Post subject: Re: *⁂* Confetti Rain *⁂*
Posted: Mar 25th, '21, 23:12    


jacobgrey

Joined: Jun 27th, '10, 20:26
Posts: 10677
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Location: England
Yeah, it's true, no matter what the underlying cause is, it's good to get it treated :D

Lol Mem I am exactly like that. I am just like Moi, I research things carefully and try to see whether I really could have something without jumping to conclusions. But then my head's like, but what if you're just being neurotic? what then???

(0) (0)
First fairy 8.4.15; 2nd 7.6.17
My books ~*~ My magazine



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 Post subject: Re: *⁂* Confetti Rain *⁂*
Posted: Mar 25th, '21, 23:20    


memoriam

Joined: Feb 14th, '11, 01:50
Posts: 19450
Hugs: 266237
Mood: Mood.
Location: Poland; in my bubble.
Exactly! And then I'm like: not only hypochondriac, but also neurotic, on top of anxiety and OCD and what if it's obsession? Or mania? Am I bipolar/borderline/schizophrenic/plain crazy? Are rats big mice or mice are tiny rats? Are hamsters just mice without tails? Is the Sun going 'round Earth? Does it circle us vertically? Are we a video game? Is life Matrix? What if every story that was ever made up created another universe and we don't even know it? What is space? What is time? Are we even real? Is this depersonalization/derealization disorder already? I knew it, I'm crazy.

I'm only half-joking :mclaugh: :mcargh:

Edit: I wanna change my avi but I don't XD

Hey, random question: do any of you guys ever feel that strange boredom and lack of interest in chewing your food after you've been eating for a while? I don't mean being full and not being able to finish, and I don't mean the food tastes bad (or got cold and doesn't taste that good anymore). I mean just being plain bored of chewing and swallowing XD I don't know if that's normal, maybe it's because I'm a slow eater? Lol.

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In need of materials? Go to ~Memoriam's~
Free avatar/room items & knuffels!
Make the ⁂*ℭonfetti ℜain*⁂ with me!


Dec 21st/22nd 2016, R.I.P. Tila. We'll miss you, you cuddly little stinker <3
Dec 7th 2019, R.I.P. Candy. I'm sorry, my sweet little rumball...
Jan 8th 2020, R.I.P. Cotton. Farewell my golden adventurer </3
May 15th 2021, R.I.P. Kreska. I love you, angel...
Feb 3rd 2022, R.I.P. Kropka. Goodbye, my *starshine*
Nov 27th 2022, R.I.P. Strzałka. You will be missed, lazy ball.
Jan 5th 2023, R.I.P. Iskra. Spark until the end.
Jan 26th 2024, R.I.P. Mocha. You can fool around now, baby <3
Feb 22nd 2024, R.I.P. Latte. Now you are truly a free spirit...
May 29th 2025, R.I.P. Ścieżka. The toughest fighter. We miss you dearly.


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 Post subject: Re: *⁂* Confetti Rain *⁂*
Posted: Mar 26th, '21, 01:47    


Moi

Joined: Jun 17th, '08, 21:48
Posts: 54000
Hugs: 525220
Mood: Know you're not alone.
Website: http://seppukuaddict.deviantart.com/
Location: \8u/

I'm very insecure and think I'm stupid, so I never say something unless I'm entirely sure because I don't want to look like an idiot.
So when I speak up, I know what I'm talking about and don't take whatever it is, lightly.
Any time I mention thinking I may have an illness, my family rolls their eyes at me and dismiss me.
So it irks me when I look into things, feel assured I know what I'm talking about, and getting dismissed or told I'm too young to have something wrong with me.
Like when I got diagnosed with Acid Reflux, my grandpa and great grandma told me I didn't have it because I was too young so I stopped taking my medication.
Also, due to my anxiety disorder, I always try to calm myself down and not just freak the hell out immediately.

I...can't say I've ever had that happen 8u

(0) (0)
Image

"I'll miss the winter
A world of fragile things
Look for me in the white forest
Hiding in a hollow tree (come find me)
I know you hear me,
I can taste it in your tears."



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 Post subject: Re: *⁂* Confetti Rain *⁂*
Posted: Mar 26th, '21, 12:22    


jacobgrey

Joined: Jun 27th, '10, 20:26
Posts: 10677
Hugs: 155517
Mood: (◡‿◡)
Website: http://www.rhiannondaverc.co.uk
Location: England
Mem, I never had that, but... I think I'm a fast eater :qoops: haha.

Also, you made me laugh because it's so accurate XD just... unravelling lol

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First fairy 8.4.15; 2nd 7.6.17
My books ~*~ My magazine



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 Post subject: Re: *⁂* Confetti Rain *⁂*
Posted: Mar 26th, '21, 14:35    


Rayven

Joined: Jun 9th, '20, 01:25
Posts: 2349
Hugs: 53618
Mood: Sassy
Location: Missouri, United States
mem-Awww, I wish you didn't think there was something wrong with you. *hugs* I hope your therapist can help you feel better about it. We're not going to be perfect because our brains can't be perfect. They're too complicated. XD

Thanks, me too. It was rough. I can understand that. Maybe you have the same problem I do. I've been told I'm just too well-rounded to concentrate on any one thing. I feel like that's kind of accurate. XD I know I'm not lazy and I doubt you are either.











Moi-Exactly. They shouldn't make women look like cartoon characters. XD Oh my. XD You're not ugly and there is lots of trickery going on. Besides, even if their skin is perfect now, it doesn't mean it always will be. I used to have great skin and it didn't get bad even when I was a teenager. But now, I have adult acne. :qcry:

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 Post subject: Re: *⁂* Confetti Rain *⁂*
Posted: Mar 26th, '21, 21:24    


Moi

Joined: Jun 17th, '08, 21:48
Posts: 54000
Hugs: 525220
Mood: Know you're not alone.
Website: http://seppukuaddict.deviantart.com/
Location: \8u/

See, I thought they didn't have pores showing. Their skin was just smooth and silky.
You can see my pores and other peoples' pores, but not those women.
So I was like "Why do my pores show? Why couldn't I be born flawless like them?"

(0) (0)
Image

"I'll miss the winter
A world of fragile things
Look for me in the white forest
Hiding in a hollow tree (come find me)
I know you hear me,
I can taste it in your tears."



    Top
 Post subject: Re: *⁂* Confetti Rain *⁂*
Posted: Mar 26th, '21, 23:19    


memoriam

Joined: Feb 14th, '11, 01:50
Posts: 19450
Hugs: 266237
Mood: Mood.
Location: Poland; in my bubble.
@Moi: You're not stupid :qh: *hugs* I think it's one of the worst feelings when the people who are closest to you just dismiss you/don't believe you. I was the youngest child in the whole family, always called every possible variation of "little one" and I can't even tell how many times I've gotten the good old "you know nothing Jon Snow"... After a while you just begin to believe you don't even matter because you're so small and thus your opinions/problems are irrelevant so there's no point of even sharing them with anyone :mcsweat: So I know the struggle of being ignored like that for no valid reason.

Older people tend to think they've got some monopoly fordeath and health issues. I can't understand it. Sure, 'cause no young person ever has gotten sick and/or died. Ridiculous. :mcmeh:

@jacob: I'm happy I made you laugh :mcglee: Idk why it makes me super happy when I make people laugh :mclol:



Thanks for answering guys, I appreciate it! :qh: I've always had that (I think) and so far I don't think I've ever met anyone who would say "yeah, totally, I get that too!" what makes me feel super weird about myself :mcheh: Is it an eating disorder? Is it adhd? who the fuck knows? XD
I had other random questions to ask but I already forgot what they were xD #goldfishmemory

@Ray: Funny you should mention being "well-rounded" (thanks for making me learn a new word :mcgrin: ), because basically that's what my therapist said when I told her how disorganized I am :mclaugh: She didn't mean it like "you can't be this or that because you're too well-rounded", she just had missing information and so she was fooled by the outside signs :mcheh: She said something along the lines of "what are you talking about, I think you're VERY organized! I see the board with post-its behind you all the time, you showed me that to-do list which was color coded and I was astonished! How do you mean you're disorganized? You don't seem to be :mcgasp: ". So my response was: "oh, the post-its? Yeah, I haven't looked at them for months, because they only motivate me for a short while and then there's too much on them and I get intimidated and quit using them. And sure, I made that color coded to-do list, even redid it later on, just to put it away and never glance at it again... Then there's also the issue of not drinking enough water/not eating/ not going to the toilet to pee because I get distracted/sidetracked by a video/hunger/a piece of trash on the table/a conversation etc. It's a good thing I don't need an adult diaper 24/7 :mcheh: "
But she told me I can always go see a doctor about the worrying signs (since she's not a clinical psychologist) and ask for help with finding the right lable if that would help me. She just told me not to get attached to the "adhd" label because maybe it's a completely different thing that looks similar or maybe it's that plus other things. To just not expect a certain diagnosis and perhaps stop researching things on adhd, because then I might unconsciously provide false information during potential assessments with my doctor. Which sounds wise and I probably should do that...


Jeez Louise, I've been writing this post for at least couple hours... :mcsweat: Do any of you happen to do that sometimes? Because for me it's just normal XD

(0) (0)
In need of materials? Go to ~Memoriam's~
Free avatar/room items & knuffels!
Make the ⁂*ℭonfetti ℜain*⁂ with me!


Dec 21st/22nd 2016, R.I.P. Tila. We'll miss you, you cuddly little stinker <3
Dec 7th 2019, R.I.P. Candy. I'm sorry, my sweet little rumball...
Jan 8th 2020, R.I.P. Cotton. Farewell my golden adventurer </3
May 15th 2021, R.I.P. Kreska. I love you, angel...
Feb 3rd 2022, R.I.P. Kropka. Goodbye, my *starshine*
Nov 27th 2022, R.I.P. Strzałka. You will be missed, lazy ball.
Jan 5th 2023, R.I.P. Iskra. Spark until the end.
Jan 26th 2024, R.I.P. Mocha. You can fool around now, baby <3
Feb 22nd 2024, R.I.P. Latte. Now you are truly a free spirit...
May 29th 2025, R.I.P. Ścieżka. The toughest fighter. We miss you dearly.


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