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Re: The Ethereal Saloon
Posted: Feb 26th, '15, 23:00
by jadepanda-ai
I found more about it on the mayo clinic page with the jaundice thing, I've heard of jaundice but forgot exactly what it caused and such
(unless you mean my brothers skin, my mom says he had orange skin when he was born, maybe he's an alien

)
Spoiler
Infant jaundice is a yellow discoloration in a newborn baby's skin and eyes. Infant jaundice occurs because the baby's blood contains an excess of bilirubin (bil-ih-ROO-bin), a yellow-colored pigment of red blood cells.
Infant jaundice is a common condition, particularly in babies born before 38 weeks gestation (preterm babies) and some breast-fed babies. Infant jaundice usually occurs because a baby's liver isn't mature enough to get rid of bilirubin in the bloodstream. In some cases, an underlying disease may cause jaundice.
Treatment of infant jaundice often isn't necessary, and most cases that need treatment respond well to noninvasive therapy. Although complications are rare, a high bilirubin level associated with severe infant jaundice or inadequately treated jaundice may cause brain damage.
Re: The Ethereal Saloon
Posted: Feb 27th, '15, 03:50
by Nankuii
Oh I meant your brother's x'D
There's always a darker side to everything :(
Re: The Ethereal Saloon
Posted: Mar 6th, '15, 01:04
by jadepanda-ai
ok, so since I'm to keep you guys updated (which I do a terrible job at btw), here's an update
Spoiler
I had a high resolution ct scan sometime during the last two months, and the doctor saw two to three blebs on my lung (I forget if I posted this here or not) but basically blebs are 'air blisters' and when those rupture they would leak air from my lung into my chest wall area, which can either cause just tons and tons of pain or a collapse depending on how much air leaks out.
I have also been seeing a new doctor who had me do some tests to figure out why I've been super short of breath more often than not, I did the tests a few weeks ago, and I got with the doctor today, he says that I have something called Da Costa's Syndrome/Neurocirculatory Asthenia. it doesn't sound like he knows of any way to treat it, so it's probably just something I'll have to live with. (I'm still reading up on this myself, I'd like to know more about this thing for myself)
but now I know what's going on, and it's a HUGE relief, it was so irritating seeing doctors who would just go "well... we don't see anything wrong, here's drugs go home"

Re: The Ethereal Saloon
Posted: Mar 6th, '15, 05:33
by Nankuii
He didn't say to go to another doctor who specialized in it? I also read a bit. Are you going to change things yourself?
Glad one problem is away! ^^
Re: The Ethereal Saloon
Posted: Mar 9th, '15, 05:25
by jadepanda-ai
from what I've read on it, people sort of gave up on it a bit more after realizing that it was not a 'heart condition' like they originally thought... so it's a bit more uncommon I suppose
all they can do for me really is try to help with the pain I've been in, but all they can do with that is try out different medications to see if one helps..
I'm not really sure how I'd change things myself with this :\
I know what's going on now, yeah, that's great and stuff.. but there are 'no known treatments' so, I think all I can do is keep doing what I've been doing. hold on best as I can and try to push onwards, no matter how hard things get.
Re: The Ethereal Saloon
Posted: Mar 9th, '15, 05:41
by Nankuii
Oh -_-;
I think I read that changing your nutrition... can help? o.e I'm not sure. Or like exercising... ?
Re: The Ethereal Saloon
Posted: Mar 18th, '15, 08:29
by jadepanda-ai
exercising has been.... insanely hard..
as for nutrition, I'm not entirely sure what there would be to change, I'm a bit underweight at the moment, but it's been fairly impossible to gain anything..
I read from another site that if you sit up straight can help? but that's with them personally, whereas when my lung/chest wall pain starts acting up as well, it hurts worse to sit up straight and better to curl up.
so by the sounds of it, it's just whatever people end up doing that works for them, but no actual fixes? I'm not really sure...
Re: The Ethereal Saloon
Posted: Mar 19th, '15, 05:05
by Nankuii
I gained 6 pounds ~w~;;
Mm, hearing that, I think so as well :o I suppose you can only find that one thing to help you? <:T
Re: The Ethereal Saloon
Posted: Apr 3rd, '15, 19:17
by jadepanda-ai
that's not necessarily a bad thing though (I don't know how much you weigh though

)
what have you been up too, Nan?
Re: The Ethereal Saloon
Posted: Apr 5th, '15, 10:20
by Nankuii
Shh ~ That's the secret >:3 But as long as I'm not under weight or over weight... I suppose it's fine >3>
Panicking from not doing homework. It's spring break right now... and the homework. And projects. I'm so glad I have Monday off.